Inhale & Exhale.

Well I’m sick again. It’s probably just bronchitis, again. I hope its not anything worse. But I’ve felt like this over two months and have done over three weeks of antibiotics. God damn you body, man up!

Oh I love laying in bed and not being able to do anything because my heart is racing and has been for three days and now I’m contemplating going to the emergency room …. how fun. NOT.

I’m going to scream.

Well I’ve worked at this job for about ten months now (elementary school) and now that its summer that means working at the summer program at a different school and so ny new supervisor said I need a doctors now showing my accomodation list. So I did.

I need open toed shoes to prevent swelling. I need to work short 3/4 hour shifts. And I need to stay out of sunlight when the weather is about 55.

Well, now I have no job. Apparently these are reasonable accomodations. So they told me I can’t work until august. Which is weird because ill still need these same fucking things. If I has the money I would sue. Damn bastards.

I remember why I changed my major, it breaks my heart knowing ill never be able to do the things I want to because of my disease. Can’t live in new York or LA and pursue my art. I can’t do all the things and have the life I imagined. I wanted to be an artist, live in an amazing large city, with beaches and scenery. I wanted to do all of these thongs and now I can’t …. Art school Running Exercise Such simple things … I was enrolled at the art institute right before I got sick, then had to withdraw because of my stupid fucking health issues. Pursuing art hurts because its a reminder of my limitations. It’s breaks my heart that I can’t paint or draw for too long before my hands swell. I can’t even stand or walk for too long without my knees swelling. I can’t live in a hot city because everything above 60 degrees makes me flare. Ugh, his damn erythromelalgia.

I hate when people tell me I look tired, why not just come out and say I look like shit? Let’s be honest here.

well,

I changed my major BACK to fine art, because bio was boring as hell. And, I’d rather paint than study. 

Bags and EM

chronicstupidity:

I’ve noticed that with school bags or anything I sling over my shoulder, it normally quickly triggers my EM. I’ve  brought a huge handbag to replace my schoolbag so then only one shoulder is affected, and then I can keep my writing/art hand mostly ok. Any of you have the same issue with having anything slung over your shoulders?

yep, same here but it’s mostly like if my arms are covered by anything, mostly material though. if i wear long sleeves it only takes minutes before my hands flare up.